Intestinal Transplant Association (ITA)

Intestine Transplant Registry: 25 Years of Follow-Up Results

Intestinal Transplant Association — Tue, 15 Jun 2010 17:53:55 +0000

For more information contact the Registry

Intestinal Transplant Association — Wed, 12 Aug 2009 20:28:09 +0000

Intestinal Registry’s Scope

arashkashfi — Wed, 29 Apr 2009 18:32:45 +0000

Mission. The mission of the ITR is to provide data on the outcomes of intestine transplantation to the international intestine transplant community in order to support their efforts and improve outcomes as well as inform policy development.

Background. The Intestinal Transplant Registry (ITR) is currently managed by the Intestinal Transplant Association (ITA) under the direction of David Grant. Analyses are directed by the Research Committee of the Association.

The Registry has collected data on the world-wide outcomes of intestine transplantation since 1985. Data are provided every two years by participating centres. It is compiled, verified, analyzed, and presented in aggregate form only at the Bi-Annual meeting of the ITA. Specific queries about outcomes are provided to participating centres upon request.

Data Collected. Currently, the Registry collects the following information:

Donor information

Recipient demographics, such as gender and age.

Pre-transplant diagnosis leading to transplant.

Pre-transplant status (the patient’s condition before transplant).

Type of transplant (bowel; bowel & liver; or “cluster transplant”).

Post-transplant status and complications.

Anti-rejection drugs taken by patients.

Analyses

Descriptive reports of donor and recipient profiles; and transplant outcomes.
Inferential Analyses to determine factors affecting outcomes by means of:

Univariate analyses (data checking and validation)
aggregate bivariate analysis

· trend analysis

· predictive multinomial model building

Privacy and Confidentiality. Data are presented in aggregate form only, and international privacy and data security have been met ensure patient data and centre confidentiality.

Recent Publications

arashkashfi — Wed, 29 Apr 2009 18:27:25 +0000

Click Here for an Up-To-Date Pub-Med query on relevant Intestinal Transplantation publications

Members’ ListServe

arashkashfi — Wed, 29 Apr 2009 18:07:32 +0000

In oder to improve communication between the intestinal transplant community, we are pleased to introduce the new Members-only ListServe. You can subscribe to it by logging in below.

Click HERE to go to the Subscribe to the ListServe Screen

Upon logging in, please be sure to verify your information is correct and make any updates.

ITR Forms

arashkashfi — Wed, 29 Apr 2009 17:49:42 +0000

It is highly advisable that the update be done electronically, through the Microsoft Access file sent to each centre. If this is not possible, we have set up an online form on this site that allows paper based centres to update without the need to physically mail the forms or fax them.

Please fill out the online form for each patient, AND attach the corresponding PDF* form for each patient for verification purposes.

- For patients Transplanted after May 31, 2007 or not previously included in the registry - New Patient Forms (BETA)

- For patients Transplanted before May 31, 2007 - Patient Update Form (BETA)

The Blank PDF form file can be obtained by Clicking HERE

In case of any doubts or inquiries regarding ITR patient forms please contact:

Max Marquez, MD

max.marquez@uhn.on.ca

XI International Small Bowel Transplant Symposium

HO — Tue, 14 Apr 2009 17:12:32 +0000

Bologna, Italy
September 9-12, 2009
The Royal Hotel Carlton
Presented by:
The Transplant Division
St Orsola Hospital
University of Bologna

Symposium Website: http://www.isbts2009.com
Course Chairman
Antonio D. Pinna, MD
Director of General Surgery and Transplant Division
Dept. of Surgery
Intestinal Transplant Program
St Orsola Hospital
University of Bologna - Italy
Co-Chairman
Loris Pironi, MD
Associate Professor of Medicine
St Orsola Hospital
University of Bologna - Italy
Local Organizing Committee
Luca Ansaloni, MD
Mirella Campomori
Fausto Catena, MD
Matteo Cescon, MD
Franca Collesi
Antonia D’Errico, MD
Giorgio Ercolani, MD
Augusto Lauro, MD
Scientific Planning Committee
Kareem M. Abu-Elmagd, MD, PhD, FACS
Sue Beath, MD, BS MRCP, FRCPCH
Galen Cortina, MD, PhD
Douglas G. Farmer MD, FACS
Thomas M. Fishbein, MD
Jonathan Fryer, MD
Olivier Goulet, MD
David Grant, MD, FRCSC
Beverly Kosmach-Park,MSN, CRNP
Alan Langnas, DO
Jorge Reyes, MD, FACS
Andreas Tzakis, MD, PhD

HO — Tue, 14 Apr 2009 15:38:23 +0000

Functions of Intestine

HO — Fri, 10 Apr 2009 18:16:29 +0000

The intestine is a muscular tube that moves food from the stomach to the anus. As food travels through the small and large intestines, fluids and nutrients are absorbed through the intestinal wall. People become dehydrated and malnourished when the intestine does not function well. Symptoms of intestinal failure include: persistent diarrhea, dehydration, muscle wasting, poor growth, frequent infections, weight loss, and fatigue.

History of Intestinal Transplant

HO — Wed, 01 Apr 2009 18:24:01 +0000

Bowel transplantation was first attempted in humans during the 1960s. At that time, patients were dying of starvation after having a large portion of their bowel removed because of disease or trauma. Parenteral (intravenous) feeding was not yet available, and surgeons hoped that the transplanted bowel would function normally. These first intestinal transplant patients died, however, from technical complications such as: rejection, or infection. Successful intestinal transplants were not performed until the mid-1980s when better immune suppressive drugs became available along with better methods to prevent infections. As a result of these improvements, today almost 1000 patients have been able to stop total parenteral nutrition (TPN), resume a normal diet, and enjoy a healthy lifestyle after intestinal transplantation.